Partner Presence in Clinic Study


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Participant Information


You can download a copy of our Participant Information below.

If you'd like to do our survey now- Partner Presence in Clinic Survey

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Exploring comfort with patients’ designated partners in clinic study.

You are invited to take part in this study to share your views on current practices surrounding the presence of a patient’s designated partner* during clinic visits. 

You are a doctor or nurse who has worked in clinic in the past, or currently work in clinic where you see patients who use treated for sleep apnoea.  (*Partner describes the patient’s designated support person.)

 

Why are you being asked? / What is it all about?

A recent study identified that users of CPAP manage their therapy successfully when a close family member, typically the bed-partner, is involved in the process. 

Partners have a stake in the use of CPAP, and our data indicate that they are key to supporting the CPAP user. We anticipate between 100 and 200 participants.   

This study is the first part of a program to examine the effect of partner inclusion during clinic visits, which is dependent upon the acceptability of partner involvement to clinicians. 

As you work with patients in clinic, we invite you to share your views about partners or other family being present when you are in clinic.  The project will be conducted in Auckland, and where possible nationally.

We will use this information to help us understand the factors that affect your work in clinic.

 

Tell Your Story

You can choose to complete a short survey, a brief interview over the phone, or both. The phone interview should be no more than 30 minutes long and be audio recorded by me as we talk.  We will transcribe the recording into a word document.

 

Participation

Your participation is voluntary (your choice). You do not have to take part in this study. If you do agree to take part, you do not have to answer every question. 

You have the right to withdraw from the interview at any point. As the survey is anonymous, data cannot be withdrawn once the questionnaire has been submitted.

 

Confidentiality

By completing the online survey or contacting the principal investigator for an interview you are giving consent to take part in this study.  We will also provide a written consent to complete if you opt for an interview.  

In addition, you are showing that you understand that your responses during the interview will be anonymous. All information collected (including electronic data, audio-recordings, and individual interview transcripts) will be stored in password-protected database and accessible only to the researcher/s. 

The information will be retained on The University of Auckland server for a period of no more than six years beyond the end of the project.

For any concerns regarding ethical issues, or your rights as a participant, you can contact the researchers directly via the contact details below, or an Independent Health and Disability Advocate on 0800 555 050, e-mail: advocacy@hdc.org.nz, or the University of Auckland Human Participants Ethics committee on 09 373-7599 ext. 83711, e-mail: ro-ethics@auckland.ac.nz

 

If you have further questions about this study please feel free to contact one of us:

Principal Investigator: Dr Kim Ward 
k.ward@auckland.ac.nz
09 923 3119

 

Dr Rosemary Frey
r.frey@auckland.ac.nz
    
09 923 1353

 

APPROVED BY THE UNIVERSITY OF AUCKLAND HUMAN PARTICIPANTS ETHICS COMMITTEE
ON 19-APR-2017 FOR THREE YEARS. REFERENCE NUMBER 018787.